Across the U.S. and EU, physicians report that mental health challenges frequently interfere with the daily lives of rare disease patients, with 61% in the U.S. and 74% in the EU citing significant impact.
Konovo’s research highlights the profound mental health burden facing rare disease patients across the U.S. and EU. In the U.S., 61% of physicians report that mental health challenges interfere with patients’ daily lives, rising to 74% in the EU, yet routine screening remains inconsistent across specialties. Despite widespread recognition of emotional distress, many clinicians struggle to find mental health providers who understand rare disease contexts, revealing a persistent gap between awareness and access. Complementary patient research reinforces this signal, showing high levels of emotional distress but limited engagement with professional support
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